Population based Stroke Registries are essential to understand the burden of stroke in populations, within country variation in stroke incidence, trends in occurrence of stroke, and monitoring the interventions to reduce stroke incidence.
Population Based Stroke Registry (PBSR) has been initiated in one geographical area from the south, north, east, west and north east regions of India. PBSR shall collect information on incidence of first ever stroke in defined populations. Data shall be collected by active case detection from multiple sources (hospitals, nursing homes, clinics, GPs, imaging centres, other centres, and death certificate verification for stroke) by a PBSR team housed in a Medical Institution identified as the PBSR centre. The PBSR Centre will collaborate with as many centres in a given area to record all incident cases of stroke using a Core Form.
Selection of PBSR Centres
The Department of Health Research Scheme on 'Multi-Disciplinary Research Units (MRUs) in medical colleges' has been supporting government medical colleges with infrastructure and building capacity so as 'To undertake research in non-communicable diseases'. The selected centres are Medical colleges that are MRUs.
The objective of HBSR is to describe the patterns of care and treatment in patients with stroke in hospitals. HBSR collects data on persons with stroke over time who have received treatment in the respective hospital. Hospitals treating stroke patients in different parts of India can join as participating centres.
The HBSR includes all persons of age ≥18 years with first-ever or recurrent stroke presenting within a month of onset of stroke to the reporting institution/hospital. The HBSR includes data on all patients with stroke from different geographic areas who seek treatment in that hospital. Data on diagnosis, treatment, and outcome information of stroke patients is collected through review of medical, imaging and other records and data is abstracted in a Core form.
HBSR will facilitate in assessing quality of care available for stroke patients in different treatment settings. This will help in improving preventive, curative and rehabilitative services for stroke in India.
Data on stroke incident events (PBSR) and first ever or recurrent stroke events (HBSR) will be recorded through a web-based electronic information system coordinated by the ICMR-National Centre for Disease Informatics and Research (NCDIR). Data are transmitted online using authenticated login credentials are encrypted, and data security and confidentiality of data are maintained.